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​February was chosen as Rare Disease Month, as it has a unique. and "rare" number of days. 

Rare Disease Day is celebrated internationally on the last day of February each year.

Our group hosts Rare Disease Awareness Month initiatives and Rare Disease Day at SUN and TBH each year. Additionally, we run a social media campaign every year, called #28DaysOfRare, to raise awareness of Rare Diseases in South Africa. Other activities include writing op-eds for the media and giving interviews on local radio and podcasts. All posts can be found @SuMBHG or @RareGenomicsRSA on Twitter, Facebook, Instagram and TikTok.

Read more about how Rare Diseases are still being left behind here

Read about our work in an interview by RarityLife (UK) here​

Listen to the SUN podcast Prof Shahida Moosa gave ​here

Watch videos about the work we do, especially centred around Rare Disease month, here​ and on our YouTube channel here​

For our 2023 highlights, check out the following:

RADIO and TELEVISION interviews by Prof Moosa

Radio Sonder Grense (RSG) - Interview in Afrikaans

Newzroom Afrika TV Interview

NEWSPAPER ARTICLES

News24 article

Rare diseases.pdf

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RARE DISEASE DAY in pictures

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ANNUAL ACTIVITIES