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Division of Molecular B​iology and Human Genetics

Rare Disease Genomics

​​​​​S​OCIETAL IMPACT 

​February was chosen as Rare Disease Month, as it has a unique and "rare" number of days. 

Rare Disease Day is celebrated internationally on the last day of February each year.


Our group hosts Rare Disease Awareness Month initiatives and Rare Disease Day at SUN and TBH each year. Additionally, we run a social media campaign every year, called #28DaysOfRare, to raise awareness of Rare Diseases in South Africa. Other activities include writing op-eds for the media and giving interviews on local radio and podcasts. All posts can be found @SuMBHG or @RareGenomicsRSA on Twitter, Facebook, Instagram and TikTok.


#ResearchForImpact

- read all about little Ano, a #RareWarrior here

- read a #WomenOfSU higlight on Prof Moosa here


Publications

Read more about how Rare Diseases are still being left behind here

Read about our work in an interview by RarityLife (UK) here​

News24 article

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Audio/Radio/Podcasts/TV


2024 International Day of Women and Girls in Science: 

MFM 92.6 interviewed Prof Moosa - listen below

​ Prof Moosa was also interviewed on NewzAfrika - watch here


#RareDiseaseAwareness Interviews

Listen to Prof Moosa and Jessica Cormick on BBC Science in Africa

Listen to Prof Moosa as part of the German Public Radio's Africa's Present and Future broadcast

Listen to the SUN podcast Prof Shahida Moosa gave here

Watch videos about the work we do, especially centred around Rare Disease month, here​ and on our YouTube channel here​

Radio Sonder Grense (RSG) - Interview in Afrikaans

Newzroom Afrika TV Interview



RARE DISEASE MONTH and RARE DISEASE DAY in pictures

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ANNUAL ACTIVITIES


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