​​​2024 

  • Chabilall J, Brown Q, Cengiz N, Moodley K. Data as scientific currency: Challenges experienced by researchers with sharing health data in sub-Saharan Africa. PLOS Digital. 

  • Omutoko L, Chingarande GR, Botes M, Moyana F, Singh S, Jaoko W, Sevene E, Mtande TK, Edwin A, Matandika L, Burgess TL & Moodley K. Understanding and processing informed consent during data-intensive health research in sub-Saharan Africa: Challenges and opportunities from a multilingual perspective. Research Ethics.

  • Rennie S, Litewka S, Vayena E, Chingarande GR, Mtande T, Cengiz N, Singh J, Jaoko W, Moodley K. (2024). Private commercial companies sharing consumer data with health researchers in sub-Saharan Africa: an ethical exploration. Policy Studies. ​https://doi.org/10.1080/01442872.2024.2403506​

  • Brown Q, Chabilall J, Cengiz N, Moodley K (2024) Trust as moral currency: Perspectives of health researchers in sub-Saharan Africa on strategies to promote equitable data sharing. PLOS Digit Health 3(9): e0000551. https://doi.org/10.1371/journal.pdig.0000551​​

  • Cengiz N, Kabanda SM, Moodley K (2024) Cross-border data sharing through the lens of research ethics committee members in sub-Saharan Africa. PLoS ONE 19(5): e0303828. https://doi.org/10.1371/journal.pone.0303828

  • Moodley K. Artificial intelligence (AI) or augmented intelligence? How big data and AI are transforming healthcare: Challenges and opportunities. S Afr Med J [Internet]. 2023 Dec. 31 [cited 2024 Mar. 7];114(1):22-6. https://doi.org/10.7196/

  • Nienaber McKay AG, Brand D, Botes M, Cengiz N, Swart M. The regulation of health data sharing in Africa: a comparative study. J Law Biosci. 2024 Jan 18;11(1):lsad035. doi: 10.1093/jlb/lsad035​


​2023

South African Journal of Science. Special Issue June 2023: Big Data and AI in health sciences research in sub-Saharan Africa

  • Moodley K, Rennie S. The many faces of the big data revolution in health for sub-Saharan Africa. S Afr J Sci. 2023;119(5/6), Art. #16158. https://doi.org/10.17159/ sajs.2023/16158​

  • Cengiz N, Kabanda SM. Biased and sex-aggregated data: The forgotten half of the population. S Afr J Sci. 2023;119(5/6), Art. #14722. https:// doi.org/10.17159/sajs.2023/14722

  • Goodman KW, Litewka SG, Malpani R, Pujari S, Reis AA. Global health and big data: The WHO's artificial intelligence guidance. S Afr J Sci. 2023;119(5/6), Art. #14725. https:// doi.org/10.17159/sajs.2023/14725

  • Obasa AE, Palk AC. Responsible application of artificial intelligence in health care. S Afr J Sci. 2023;119(5/6), Art. #14889. https:// doi.org/10.17159/sajs.2023/14889

  • Poongavaanan J, Xavier J, Dunaiski M, Tegally H, Oladejo SO, Ayorinde O, et al. Managing and assembling population-scale data streams, tools and workflows to plan for future pandemics within the INFORMAfrica Consortium. S Afr J Sci. 2023;119(5/6), Art. #14569. https:// doi.org/10.17159/sajs.2023/14659​

  • Kling S, Singh S, Burgess TL, Nair G. The role of an ethics advisory committee in data science research in sub-Saharan Africa. S Afr J Sci. 2023;119(5/6), Art. #14724. https:// doi.org/10.17159/sajs.2023/14724

  • Nair G, Burgess TL, Obasa AE, Kling S, Singh S. Revisiting community engagement methods in the context of data science research and big data use in South Africa. S Afr J Sci. 2023;119(5/6), Art. #14723. https:// doi.org/10.17159/sajs.2023/14723

  • Day S, Rennie S. Data science research in sub-Saharan Africa: Ethical considerations in crowdsourcing for community engagement. S Afr J Sci. 2023;119(5/6), Art. #14911. https:// doi.org/10.17159/sajs.2023/14911​

  • Murtala-Ibrahim F, Jumare J, Charurat M, Xiong C, Naranbhai V, Dakum P, et al. Setting up data science research in Africa and engagement of stakeholders. S Afr J Sci. 2023;119(5/6), Art. #14726. https:// doi.org/10.17159/sajs.2023/14726

  • Luo W, Xiong C, Wan J, Feng Z, Ayorinde O, Blanco N, et al. Revealing human mobility trends during the SARS-CoV-2 pandemic in Nigeria via a data-driven approach. S Afr J Sci. 2023;119(5/6), Art. #14727. https://doi.org/10.17159/ sajs.2023/14727

  • Rennie S, Atuire C, Mtande T, Jaoko W, Litewka S, Juengst E, et al. Public health research using cell phone derived mobility data in sub-Saharan Africa: Ethical issues. S Afr J Sci. 2023;119(5/6), Art. #14777. https:// doi.org/10.17159/sajs.2023/14777

  • Brand D, Nienaber McKay AG, Cengiz N. What constitutes adequate legal protection for the collection, use and sharing of mobility and location data in health care in South Africa? S Afr J Sci. 2023;119(5/6), Art. #14605. https://doi.org/10.17159/ sajs.2023/14605

  • Cengiz N, Kabanda SM, Esterhuizen TM, Moodley K. Exploring perspectives of research ethics committee members on the governance of big data in sub-Saharan Africa. S Afr J Sci. 2023;119(5/6), Art. #14905. https:// doi.org/10.17159/sajs.2023/14905

  • Kabanda SM, Cengiz N, Rajaratnam K, Watson BW, Brown Q, Esterhuizen TM, et al. Data sharing and data governance in sub-Saharan Africa: Perspectives from researchers and scientists engaged in data-intensive research. S Afr J Sci. 2023;119(5/6), Art. #15129. https://doi. org/10.17159/sajs.2023/15129

  • Oladejo SO, Watson LR, Watson BW, Rajaratnam K, Kotze MJ, Kell DB, et al. Data sharing: A Long COVID perspective, challenges, and road map for the future. S Afr J Sci. 2023;119(5/6), Art. #14719. https:// doi.org/10.17159/sajs.2023/14719

  • Botes M. Regulating scientific and technological uncertainty: The precautionary principle in the context of human genomics and AI. S Afr J Sci. 2023;119(5/6), Art. #15037. https://doi.org/10.17159/ sajs.2023/15037


2022

  • ​Moodley K, Cengiz N, Domingo A, Nair G, Adetayo E, Lessels RJ. (2022). Ethics and governance challenges related to genomic data sharing in southern Africa: the case of SARS-CoV-2. The Lancet Global Health. doi.org/10.1016/S2214-109X(22)00417-X.

  • Brand D, Singh JA, McKay AG, Cengiz N, Moodley K. (2022). Data sharing governance in sub-Saharan Africa during public health emergencies: Gaps and guidance. SAJS. DOI:10.17159/sajs.2022/13892.​